What’s next?

How do you top a blog post about understanding disabilities that had almost 2,000 views?

The answer is, you don’t. You just keep being honest about your everyday life and hope for the best.

Keith and I went on our first trip together since Disney January 2020. We went to New York for a weekend for a friends wedding! It was honestly such an amazing time and he was so thoughtful thinking about how far I could or couldn’t walk, checking in on me, just being really sweet.

l started crying while we were on the dance floor because I couldn’t hear most of the songs at the wedding so Keith was so sweet to sing the lyrics in front of me so I could read his lips and then I could catch onto the words. But this makes me nervous for our own wedding. I actually texted my DJ and asked if he had a screen like for closed captioning HA

We are now home but Keith is away on a business trip and I have realized I can’t be alone but I didnt know how to express that to others. I also have a common cold but I keep having to tell my brain that it’s not a life or death situation. That I am ok. I don’t need to go to Tufts for this. It’s hard when the thoughts in your head take over…

I finally found a way to tell my dad that yesterday. It was kind of in a disgruntled text but he knew to FaceTime me to see what I needed. I didn’t want to feel like a burden to him by saying that even though my legs work and I can get up and go anywhere, I still felt trapped.

And you know what he said to me? “You know that self love tattoo you have? Sometimes it means reaching out and communicating with your family that you’re not ok and that’s ok.”

I was floored. We spent the afternoon doing nothing but watching tv and laughing and it was all the comfort that I needed.

Don’t be afraid to speak up when you need something. Especially to those around you who love and support you.

xo